Cure Duchenne Blog

My son, Justin Paul Monastesse, was a gift and he lived with Duchenne for more than 25 years. Justin always had a great time even though it took 2 1/2 […]

  Dear Patient Group Representative, On the 20th of September this year, we shared the results about our Phase III study (DMD114044) of drisapersen in boys with Duchenne Muscular Dystrophy […]

Click here for the recorded webinar:  https://cc.readytalk.com/cc/playback/Playback.do?id=2lyea5 CureDuchenne has been an early and important funder of exon skipping research for Duchenne.  As we gain visibility to an actual therapeutic with exon […]

The “U.S. Conference on Rare Diseases & Orphan Products: The New Era in Health Care” hosted by DIA and the National Organization for Rare Disorders (NORD) was held in Bethesda, […]

This is a very brief summary of some of the key points from this morning’s webinar hosted by Sarepta and moderated by Chris Garabedian, CEO and Ed Kaye, CMO.  CureDuchenne […]

On Tuesday October 15, GSK and Prosensa conducted a conference call for the Duchenne community, especially for members that may not have been at several of the recent meetings where […]

Dear Patient Group Representative, GSK and Prosensa will hold a joint webinar on Tuesday 15th October 2013 at 4:00 PM British Summer Time (GMT+0100) for the DMD patient community.   […]

Dear Patient Group Representative, GSK and Prosensa will hold a joint webinar on Tuesday 15th October 2013 at 8:00 am Pacific, 11:00 am Eastern for the DMD patient community.   Pre-registration entry for […]

We wanted to let you know that Sarepta Therapeutics will host a webcast and conference call on October 17.  Please see information below from Sarepta.  We encourage you to submit […]