Cure Duchenne Blog

Will you help us Cure Duchenne now?

My son, Justin Paul Monastesse, was a gift and he lived with Duchenne for more than 25 years. Justin always had a great time even though it took 2 1/2 […]

Summary of the DIA and NORD Conference

The “U.S. Conference on Rare Diseases & Orphan Products: The New Era in Health Care” hosted by DIA and the National Organization for Rare Disorders (NORD) was held in Bethesda, […]

GSK/Prosensa Duchenne Community

Dear Patient Group Representative, GSK and Prosensa will hold a joint webinar on Tuesday 15th October 2013 at 8:00 am Pacific, 11:00 am Eastern for the DMD patient community.   Pre-registration entry for […]