Inspired by her brother Jacob, who suffers from Duchenne muscular dystrophy, Sarah Burgess created 79 Days of Duchenne to create world awareness for this disease. There are 79 exons on […]
CureDuchenne and the Duchenne Therapy Network are pleased to provide a video and educational information on the swimming activities for those with Duchenne muscular dystrophy. The pool is great […]
CureDuchenne is pleased to share the latest update to patient groups from Prosensa, which outlines their progress to date, as well as future plans. CureDuchenne announced earlier in the week our […]
Yesterday Prosensa and CureDuchenne announced an extension of our collaboration and a path to provide access to four experimental drugs for Duchenne patients. Ten years ago, CureDuchenne provided funding to […]
We are very excited to see that Dr. Kevin Flanigan’s work on a rare Duchenne mutation, a duplication on exon 2, was published in Nature Medicine. This prestigious magazine reported […]
CureDuchenne is pleased to share the following information from Sarepta Therapeutics. They provided a summary of the regulatory developments and clinical updates. Sarepta is dedicated to helping DMD patients and […]
We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you […]
FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a […]
Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help […]
