CureDuchenne is pleased to share the following information from Sarepta Therapeutics. They provided a summary of the regulatory developments and clinical updates. Sarepta is dedicated to helping DMD patients and […]
We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you […]
FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a […]
Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help […]
Several years ago, soon after our son, Hawken’s diagnosis of Duchenne, I was at a conference, and full of mutation envy. Our son has a deletion of exon 45 and […]
Tyler Armstrong, 10, will be climbing Mt. Adams as a training climb in preparation for reaching the Seven Summits. Tyler has already climbed two of the Seven Summits – Mt. Kilimanjaro and […]
CureDuchenne is pleased to launch the 79 Days of Duchenne project with Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol. More than 79 talented individuals created […]
Leiden, The Netherlands, June 25, 2014 (GLOBE NEWSWIRE) — Prosensa Holding N.V. (NASDAQ: RNA), the Dutch biopharmaceutical company focusing on RNA-modulating therapeutics for rare diseases with high […]
CureDuchenne is pleased to announce a partnership with the Duchenne Therapy Network to provide training to physical therapists as well as Duchenne families and caregivers about specialized care for Duchenne […]
