As a mom, a family, a friend, an advocate and a community, we know that the spread of the coronavirus disease 2019 (COVID-19) is clearly creating challenging times that call for the entire Duchenne community to come together and support each other. Through these challenging times, I wanted to personally assure you that CureDuchenne is here on this journey with you.
We promise to continue to commit ourselves to providing the Duchenne community the most timely and accurate information we can, drawing from the relationships and resources CureDuchenne has built over the past 17 years.
CureDuchenne is here, still committed to helping every individual with Duchenne, their families and communities. We know that the coronavirus is presenting special circumstances for everyone, and especially for people living with Duchenne. We will provide information, solutions and advice on our website and social media channels for the unique needs of the Duchenne community.
Please connect with us:
Or, if you’d like to talk to someone directly, please call our office: (949) 872-2552
It’s very important to know that, according to the Centers for Disease Control (CDC), people living with Duchenne qualify as individuals at higher risk from coronavirus. This is due in part to reduced lung function in Duchenne, and the impact of steroids, which suppresses the immune system. It is imperative that individuals continue with the treatment plans provided by their healthcare provider and keep in close communication with their provider if any symptoms are experienced. If you are a caregiver for someone with Duchenne, it’s highly recommended to follow the guidelines from the CDC to mitigate the risk of infection, and to have a plan in place.
Here are some immediate resources that you can read and use to help better understand how to prepare your family:
Remember that we at CureDuchenne are in this with you. We are dedicated to the entire Duchenne community through these challenging times.
Founder and CEO, CureDuchenne