Dear Duchenne Advocacy Leaders,
Lately we have heard many stop to consider the progress made in the last decade in Duchenne treatment and care.
Improvements have been driven by this community – by you – and organization around key topics like care
considerations and standards of care, a topic well chosen for this year’s World Duchenne Awareness Day. In comparison
to a decade ago, there has been an explosion of study with dozens of clinical trials available in the US, Europe, and
beyond. The global footprint for trial access grows every day, increasing the need for alignment around care and ensuring
every individual with Duchenne has access to the highest levels of care…
Read the full newsletter below