14th Annual Champions to CureDuchenne Raises $329,000 to Fund Duchenne Muscular Dystrophy Research
NEWPORT BEACH, Calif., April 13, 2023 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin, hosted the 14th annual Champions to CureDuchenne fundraising gala on April 1, 2023. The event brought hundreds of Austin philanthropists, businesspeople, athletes and notables together under one roof at The University of Texas Golf Club for one united goal – a cure for the rare disease affecting 300,000 individuals worldwide. The event raised $329,000 to accelerate scientific research and support educational programs for families affected by Duchenne, a progressive and fatal neuromuscular disease.
The evening was filled with showstopping entertainment and emotionally moving speeches, including messages of hope from individuals with Duchenne. Eric Sanchez, age 20, shared his experience living with Duchenne and his future dreams. With the live auction in full swing, Timothy Revell, a 19-year-old diagnosed with Duchenne, joined the auctioneer on stage to auction off a birthday party with a special guest appearance by a University of Texas football student-athlete. Creed Ford IV, Managing Partner at Tc4 and Hospitality, bid on the live auction item, joined Timothy on stage, and gifted him the auction item.
“We are eternally grateful to Tim and Laura Revell and the Austin community as they continue to champion our mission and help us fund critical research to find a cure for this devastating disease,” said CureDuchenne founder and CEO Debra Miller. “We are on the cusp of transformative treatments, and the generosity of the community allows us to move the needle forward and provide hope for families as we get closer and closer to a cure.”
The Revells learned their two boys, Timothy and Andrew, were diagnosed with Duchenne muscular dystrophy, the rarest and most deadly form of muscular dystrophy, at just two and five years old. Duchenne is a 100% fatal disease that affects 1 in 5,000 boys. Patients are typically diagnosed as toddlers, lose the ability to walk in their early-teens and often succumb to the disease in their mid-20s. At the time of their boys’ diagnosis, treatments and information on Duchenne were limited. The Revells began to research the rare disease and connected with CureDuchenne. Tim and Laura have created several annual fundraising events to raise awareness and funds for CureDuchenne, including marathons, galas and the annual Ladies Luncheon. To date, the family has helped raise more than $6.2 million through their collective fundraising efforts.
“We’re doing everything we can to fight for our boys so they can have a brighter future,” said Tim Revell. “Laura and I are on a mission to help those who have received the same devastating diagnosis that our two boys have. The funds we help raise at this event help support CureDuchenne as they advance research that will lead to a cure for this disease. We see so much hope as these treatments move forward, which gives Laura and I strength to continue to fight for Timothy and Andrew and thousands of boys like them.”
For more information and ways to support CureDuchenne, please visit cureduchenne.org.
Twenty years ago, CureDuchenne was created with one goal: to find and fund a cure for Duchenne muscular dystrophy, the leading genetic killer of young boys. Today, CureDuchenne is recognized as a global leader in research, patient care, and innovation for improving and extending the lives of those with Duchenne. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy, including 17 projects that advanced to human clinical trials and multiple projects to overcome the limitations of exon-skipping and gene therapy. In addition, CureDuchenne contributed early funding to the first FDA-approved Duchenne drug, pioneered the first and only Duchenne physical and occupational therapist certification program and created an innovative biobank and data registry, accelerating research toward a cure. For more information on how to help raise awareness and funds needed for research, please visit cureduchenne.org.