Newport Beach, Calif., September 24, 2013: CureDuchenne raised more than $300,000 for Duchenne research at the third annual Getzlaf Golf Shootout hosted by Ryan Getzlaf, captain of the Anaheim Ducks. The event, held on September 7 and 8, benefited CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Getzlaf was joined by current and former Anaheim Ducks players including Teemu Selanne, Corey Perry, Dustin Penner, Andrew Cogliano, Cam Fowler and others who teamed up with each foursome.
“It was great to have my teammates out supporting CureDuchenne,” said Getzlaf. “The event is a great time for a good cause. The money raised will help fund critical Duchenne research and get us closer to the goal – a cure for Duchenne.”
Duchenne is a progressive muscle-wasting disease that impacts one in 3,500 boys. Boys are usually diagnosed at age 5, are in a wheelchair by 12 and most don’t live past their mid-20s.
“Events like the Getzlaf Golf Shootout allow us to share the Duchenne story,” said Debra Miller, founder of CureDuchenne. “The limiting factor in getting treatments to those impacted with Duchenne is no longer the science. It’s funding the development of these drugs. Thank you to Ryan and Paige Getzlaf for hosting this amazing event.”
Patriot Environmental Services, the premier provider of comprehensive environmental services in the southwestern United States, was the title sponsor of the Getzlaf Golf Shootout. Patriot sponsored the event in memory of Justin Paul Monastesse who lived with Duchenne for more than 25 years. Other event sponsors included The Sports Corporation, Bauer Hockey, The California Endowment, CNC Motors, The Hundred Acre Wine Group and Straub Distributing.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.