Press Releases

CureDuchenne Media Statement Regarding BioMarin and Prosensa Holding N.V. Reach Agreement on Intended Public Offer for 100% of ProsensaÌ¢‰â‰ã¢s Outstanding Stock; Will Add Duchenne Muscular Dystrophy Products to Rare Disease Portfolio

CureDuchenne is encouraged about BioMarin PharmaceuticalÌ¢‰â‰ã¢s acquisition of Prosensa and their commitment to continue the development of drugs for Duchenne muscular dystrophy. BioMarin has a deep understanding of the orphan rare disease space, experience working with regulatory authorities worldwide and a successful record of getting drugs approved.

CureDuchenne Launches “Dollar 4 Duchenne” Campaign Today for World Duchenne Awareness Day

CureDuchenne launched the Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ campaign today during World Duchenne Awareness Day to fund research to find a cure for Duchenne muscular dystrophy. The Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ campaign encourages people to donate one dollar to help fund Duchenne research. Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ is part of a comprehensive CureDuchenne fundraising campaign to raise $7 million to fund a Duchenne research project.

Ryan Getzlaf and Other Anaheim Ducks Teammates to Play in the 4th Annual Getzalf Golf Shootout to Benefit CureDuchenne on September 7

Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the fourth annual Getzlaf Golf Shootout to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. This two-day charity golf event includes a reception at Sutra Lounge in Costa Mesa on September 6 and a golf tournament held at the Monarch Beach Golf Links in Dana Point on September 7. Each foursome will be teamed up with a professional athlete or celebrity for an exciting day on the green

New Research Points to Ì¢‰âÂèÏRoute ForwardÌ¢‰â‰㢠to Treat Duchenne Muscular Dystrophy;

NEWPORT BEACH, California, August 10, 2014 Ì¢‰â‰ÛÏ A new Ì¢‰âÒroute forward for therapyÌ¢‰âÂÌ_ for patients with Duchenne muscular dystrophy, a degenerative disease that mostly afflicts young boys, has been reported by Dr. Kevin Flanigan, principal investigator at the Center for Gene Therapy at Nationwide ChildrenÌ¢‰â‰ã¢s Hospital in Columbus, Ohio.

79 Days of Duchenne

CureDuchenne is pleased to launch the 79 Days of Duchenne project with Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol. More than 79 talented individuals created 79 unique videos to the song Ì¢‰âÒRun AwayÌ¢‰âÂÌ_ written by Burgess to help raise awareness to find a cure for Duchenne muscular dystrophy.