CureDuchenne is pleased to announce a partnership with the Duchenne Therapy Network to provide training to physical therapists as well as Duchenne families and caregivers about specialized care for Duchenne patients.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, issued the following statement today regarding the announcement by Prosensa Holding N.V. (NASDAQ: RNA) that the United States Food and Drug Administration (FDA) has outlined a regulatory path forward, under an accelerated approval pathway, for drisapersen, a potential treatment for Duchenne Muscular Dystrophy (DMD).
CureDuchenne Founder and CEO Debra Miller is a panelist at the California WomenÌ¢âÂã¢s Conference on May 19 at the Long Beach Convention Center. Miller will participate in a panel called Ì¢âÂÒA New Approach to Non-Profit Impact.Ì¢âÂÌ_ She will speak about venture philanthropy and how CureDuchenne has created a successful business model to help accelerate Duchenne research.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, held its inaugural Blingo to CureDuchenne event on May 3 at the Hyatt Regency in Philadelphia. Nearly 300 people, including PhiladelphiaÌ¢âÂã¢s top business and community leaders, enjoyed an elegant evening of bingo and bling with celebrity guests while raising more than $175,000 to support the most promising research projects aimed at treating and curing Duchenne.
EY today announced that Debra Miller, founder and CEO of CureDuchenne, is a finalist for the EY Entrepreneur Of The YearÌ¢Û_å¢ 2014 Award in Orange County. The awards program recognizes entrepreneurs who demonstrate excellence and extraordinary success in such areas as innovation, financial performance and personal commitment to their businesses and communities. Miller was selected as a finalist from nearly 80 applications by a panel of independent judges. Award winners will be announced at a special gala event on June 4, 2014 at The St. Regis Resort in Dana Point.
CureDuchenne is pleased to announce that Debra Miller, founder and CEO of CureDuchenne, is a finalist for the EY Entrepreneur Of The YearÌ¢Û_å¢ 2014 Award in Orange County. The awards program recognizes entrepreneurs who demonstrate excellence and extraordinary success in such areas as innovation, financial performance and personal commitment to their businesses and communities. Miller was selected as a finalist from nearly 80 applications by a panel of independent judges. Award winners will be announced at a special gala event on June 4, 2014 at The St. Regis Resort in Dana Point.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, held its annual Champions to CureDuchenne Newport Beach Gala on March 29 at the Balboa Bay Club & Resort. More than 250 guests attended the gala that celebrated CureDuchenneÌ¢âÂã¢s 10 years of successfully advancing Duchenne research. The event raised more than $360,000 that will fund promising Duchenne research.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host its first Blingo to CureDuchenne event on May 3 at the Hyatt Regency in Philadelphia. Blingo is an elegant evening of bingo and bling with celebrity guests to raise funds to find a cure for Duchenne muscular dystrophy.
Ì¢âÂÛÏ CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that Chef Jamie Gwen will create a special menu for the annual Champions to CureDuchenne Newport Beach Gala on Saturday, March 29 at the Balboa Bay Club & Resort. Proceeds of this event will fund promising research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in 3,500 boys.
