Barry and Luci Nilson

Title: CureDuchenne Champions and Parents

Bio: Barry & Luci Nilson reside in Mission Viejo, CA and are the proud parents of 2 sons, Jake (16) and Henry (14). Henry was diagnosed with Duchenne Muscular Dystrophy when he was 2. After the devastation of the initial diagnosis, Barry & Luci chose to raise their family with hope and optimism – even when faced with challenges. ‘Adjust, adapt & accommodate’ is their family motto.

2023 FUTURES Breakout Session: Overcoming Everyday Challenges

How to talk to others about unique challenges like marriage and family dynamics, talking to your kids about Duchenne, and other everyday obstacles that many families in this community face.

Hawken Miller

Content Strategist

CureDuchenne

See more from same speaker

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

See more from same speaker

Barry and Luci Nilson

CureDuchenne Champions and Parents

See more from same speaker

Video
Share this:
Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years