CureDuchenne Link is a centralized data hub which combines clinical data, biosamples, and patient reported data for individuals with Duchenne and Becker muscular dystrophy, as well as carriers. Information and samples provided by participants are coded and available for use by approved researchers across the world.
Esta sesión de la conferencia brinda información sobre las terapias emergentes más allá de la restauración de la distrofina, así como actualizaciones/anuncios de las empresas en este espacio.
This resource provides an in-depth view of mental health practices like mindfulness and values-based gratitude practices for adults with Duchenne navigating life’s unique obstacles.
A brief overview of the rationale behind next generation technology, as well as presentations from the companies in this space. Moderated discussion included.
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