2019 FUTURES: FUNCTION Panel

This panel discusses clinical care across multiple disciplines for individuals with Duchenne.

Eric Ball, MD

Pediatrician

Southern Orange County Pediatric Associates

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Brenda Wong, MD

Professor of Pediatrics and Neurology and Director

UMass Duchenne Muscular Dystrophy Program at the University of Massachusetts Medical School

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Andrew Darmahkasih, MD

PGY-2, UC Irvine

Children’s Hospital of Orange County Pediatric Residency Program

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John Brandsema, MD

Child Neurologist and Neuromuscular Section Head

Children’s Hospital of Philadelphia

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Umme Vahanvaty, MS, RD, CS

Registered Dietitian Nutritionist

Children’s Hospital of Los Angeles

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Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

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Kathryn Wagner, MD, PhD

Director and Professor of Neurology and Neuroscience

Center for Genetic Muscle Disorders at Kennedy Krieger Institute and Johns Hopinks School of Medicine

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2019 FUTURES: FUN Panel

This panel discusses adaptive sports, activities, and equipment for individuals with Duchenne.

Armando Ornelas

Head Coach

LA Avengers Power Soccer Team

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Austin Edenfield, ATP

Quantum Product & Technical Education Manager

Pride Mobility

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Melissa McIntyre, PT, DPT

Physical therapist

University of Utah Health

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Tanja Kari, MS

Program Director

TRAILS

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Jeffrey Rosenbluth, MD

Medical Director, Spinal Cord Injury Acute Rehabilitation Program

University of Utah Health Sciences Center

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Growth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years