This resource provides financial assistance resources like government programs, waivers, savings accounts, and nonprofit support for families navigating Duchenne.
Director, Government and Social Programs
Little Hercules Foundation | Duchenne Family Assistance Program
A brief overview of the strategy guiding efforts in gene therapy and gene editing, as well as critical updates from the companies in this space. Moderated discussion included.
Chief Science Officer, Ultragenyx Gene Therapy
Ultragenyx
Vice President, Disease Area Executive, DMD
Vertex Pharmaceutical
Senior Medical Science Liaison
Sarepta Therapeutics
Presentations by CureDuchenne Champion families on how they found success in fundraising by bringing their community together.
A letter from Jennifer Wallace Valdes, PT to share with your child’s teachers. This document serves to familiarize them with Duchenne, the physical limitations posed, and reasonable accommodations for the school environment.
CureDuchenne Link is a centralized data hub which combines clinical data, biosamples, and patient reported data for individuals with Duchenne and Becker muscular dystrophy, as well as carriers. Information and samples provided by participants are coded and available for use by approved researchers across the world.
This resource presents anxiety and depression in individuals with Duchenne and introduces cognitive-behavioral strategies to mitigate these issues.
This resource provides an in-depth view of mental health practices like mindfulness and values-based gratitude practices for adults with Duchenne navigating life’s unique obstacles.
This resource offers a view of Clinical Trials 101: what they are, how they run, and how to make decisions surrounding participating in a clinical trial.
