Esta presentación trata sobre Coalición Latinoamericana DMD / BMD y cómo apoyan a las familias en diferentes países.
Presidenta, Coalición Latinoamericana DMD/DMB
Coalición Latinoamericana DMD/BMD
Esta presentación se enfoca en fisioterapia, estiramientos y transferencias seguras para personas con Duchenne y sus cuidadores.
CureDuchenne Fisioterapeuta Certificado
Children's Hospital of Phoenix
Esta presentación se enfoca en manejar los desafíos asociados con un diagnóstico de Duchenne.
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
This panel discusses mental and physical fitness in individuals with Duchenne.
Associate Professor of Pediatrics
University of California San Francisco Benioff's Children's Hospitals
Visiting Assistant Professor, Department of Pediatrics, Divisions of Pediatric Neurology, Psychiatry and Behavioral Health
University of Utah
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
